A Community For Congenital Heart Disease Patients
A network for patients and families affected by congenital heart disease (CHD). Here, support comes from lived experience. Share your story and connect with those who have been in your shoes.
Let your story inspire others
Patients
As an individual with congenital heart disease (CHD), your experiences shape the conversation. Share your thoughts, challenges, triumphs, and everything in between with others who are navigating life with CHD. You are the driving force behind this community, connect with others who have a heart like yours.
Parents & Family
As a parent or family member of a CHD patient, your perspective, concerns, and support for your loved one are essential throughout their medical journey. Whether you are navigating the hospital experience, ongoing care, or seeking comfort from others who understand your situation, your input helps build a stronger community for both patients and families alike.
Friends
Friends as essential in navigating CHD. Whether you’re offering support to a loved one with CHD, or looking to learn more, your involvement matters. You help to create a more informed and compassionate network. With your involvement, you bring much needed comfort to those navigating CHD.
The heart behind the mission
My name is Garrett, and I was born with Tetralogy of Fallot, a congenital heart defect with four separate anatomic alterations to my heart. Since birth, I have endured a total of four open heart surgeries: my first at four months old, and my last at age thirteen. Additionally, in my early twenties, I had two cardiac catheterization procedures. As a child, I frequently had the chance to share my story and bring awareness to congenital heart disease (CHD), while also interacting with and supporting others who have a “Heart Like Mine”. When I was thirteen, I nearly lost my life as a result of a complication during my pulmonary valve replacement surgery. I suffered a mammary artery laceration that led to severe internal bleeding, and after a week of recovery in the CVICU, I walked out of the hospital on my own two feet. Navigating my condition has not always been easy, but one thing that has been crucial to my success story is the support I have received from family and friends along the way. I have shared my experiences with patients and families who are also affected by CHD, giving them insight into what they may expect during the process of receiving medical treatment for their condition. I started Hearts Like Mine with the goal of creating a community for those affected by CHD. This is meant to be a platform where patients, families, and friends of those with CHD can communicate and support one another, offering emotional connection, and providing support to others who are traveling down a similar path.
Contact Us
Want to share your story? Contact us and let us know how we can help you.