Garrett’s Journey

This picture was taken when I was 13, and I had just endured 2 open heart surgeries within 48 hours of each other. After what appeared to be a successful pulmonary valve replacement operation, I was slowly deteriorating without even knowing. A sternal tie had lacerated my mammary artery and lead to severe internal bleeding, requiring an emergent operation to locate and control the bleed. I remember staring at the ceiling before an oxygen mask covered my mouth and nose. I remember seeing all of the people running around my bed, and the bright stadium lights being wheeled into my CVICU room, now turned operating room. My parents were taken out of the room without any guarantees they’d see me alive again. That week in the CVICU was the hardest thing I have ever experienced. Not only was it a physical test, but I did not come to realize the immense emotional and psychological aspect of this event until after I left the hospital. Instead of thinking what color backpack I wanted for my first day of high school, I was stuck dwelling on this traumatic event and why it even happened to me in the first place; or really why I was born with this diagnosis at all. But then everything changed. I began to make realizations of the “why me” question, and began to use it as a doorway to help others. I had always been involved in volunteer and charity work at a young age through CHOC, but now, having this life altering experience, I began to delve further into my sense of purpose: serve and help others who have a heart like mine. Since this photo was taken, I have had 2 cardiac catheterization procedures, and have continued to try my best to help families as the opportunities have allowed me to. Building this community allows me to reach far beyond my physical capabilities in an attempt to positively impact other patients/families/friends on their CHD journey. As a recent honors college graduate, and aspiring physician, I hope I am able to inspire others to chase their dreams and make a difference in the world.

This blog section of the site will serve as a place to post stories and experiences from patients/families/friends who are looking to reach out and help connect to others along their journey, so please message us under the contact information provided on the site to share your story! I look forward to what the future holds, and I cannot wait to connect with you all!